Bulletin of Semashko National Research Institute of Public HealthBulletin of Semashko National Research Institute of Public Health2415-84102415-8429FSSBI «N.A. Semashko National Research Institute of Public Health»312810.69541/NRIPH.2026.01.015Научная статьяCircle of good Foundation: are all diseases rare?ShukanElena Yurievnaeushukan@gmail.comKomarovIlya Aleksandrovichiliya_komarov@mail.ruAleksandrovaOxana Yurievnaaou18@mail.ruSmirnovaNatalia Sergeevnagenetic.natalic@mail.ruN. A. Semashko National Research Institute of Public Health, 105064, Moscow, Russian FederationPROVE Ltd., Saint-Petersburg, Russian Federation2303202619710125032026Copyright © 1970,1970In accordance with Decree No. 16 of the President of the Russian Federation dated January 5, 2021, the Circle of Good Foundation (hereinafter referred to as the Foundation) was established to support children with severe life-threatening and chronic diseases, including rare (orphan) diseases. The Foundations goal is to implement an additional mechanism for organizing and financially supporting medical care for children, providing them with medications and medical devices, including those not registered in the Russian Federation, as well as technical rehabilitation equipment. This article analyzes the diseases for which the organization of medical care is carried out for children under the care of the Circle of Good Foundation, identifies the diseases that are considered to be rare and the discrepancies between the List of Rare (Orphan) Diseases of the Ministry of Health and the List of Severe Life-Threatening and Chronic Diseases Including Rare (Orphan) Diseases of the Foundation.rare diseasesorphan drugshealthcareCircle of Good Foundationorganization of medical careредкие болезниорфанные лекарственные препаратыздравоохранениеФонд «Круг добра»организация медицинской помощи1.Kulikov A. Yu., Komarov I. A., Pochuprina A. A. Budget Impact Analysis of Belimumab In the Treatment of Patients With Systemic Lupus Erythematosus In Russian Federation. Value in Health. 2014;17(7):A525-A526. DOI: 10.1016/j.jval.2014.08.16562.Куликов А. Ю., Комаров И. А. Фармакоэкономический анализ лекарственного средства Бейодайм (пертузумаб + трастузумаб [набор]) в лечении метастатического рака молочной железы у больных с HER2+ формой заболевания. Фармакоэкономика: теория и практика. 2015;3(2):32—9.3.Куликов А. Ю., Комаров И. А. Фармакоэкономическое исследование применения бронхорасширяющих средств группы М-холиноблокаторов (Спирива® и Атровент®) в лечении хронической обструктивной болезни легких. Фармакоэкономика. Современная фармакоэкономика и фармакоэпидемиология. 2012;(3):20—6.