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Gender approach to disability and palliative care research
- Authors: Naberushkina E.K.1, Besschetnova O.V.2, Volkova O.A.3,4
- Affiliations:
- Financial University under the Government of the Russian Federation
- Moscow State University for Humanities and Economics
- Institute of Demographic Research, Federal Scientific Research Center of Russian Academy of Sciences
- Research Institute for Healthcare Organization and Medical Management of the Moscow Healthcare Department
- Issue: No 3 (2024)
- Section: Общественное здоровье и организация здравоохранения
- URL: http://bulleten-nriph.ru/journal/article/view/2783
- DOI: https://doi.org/10.25742/NRIPH.2023.03.018
- Cite item
Abstract
The article presents the results of sociological research conducted in 2016—2022 on issues of disability and palliative care from the perspective of a gender approach, which is not sufficiently updated and require closer scientific study due to the increase in the number of people with disabilities, as well as the active introduction of inclusive practices in the main areas of life as part of the implementation of the Sustainable Development Goals. Women with disabilities are under the double yoke of discrimination and stigmatization in the realization of their own femininity, family roles (wife and mother), in labor and social activities; they more often become victims of illegal actions (domestic violence, harassment, mobbing). The organization of palliative care for terminal patients also does not take into account the gender factor, which does not appear in the planning and organization of federal and regional social policy measures, professional education and training of specialists in the field of social care of the population.
About the authors
Elmira K. Naberushkina
Financial University under the Government of the Russian Federation
Author for correspondence.
Email: ellana777@mail.ru
Russian Federation, Moscow, Russian Federation
Oksana V. Besschetnova
Moscow State University for Humanities and Economics
Email: oksanabesschetnova@yandex.ru
ORCID iD: 0000-0002-4181-9886
Russian Federation, Moscow, Russian Federation
Olga A. Volkova
Institute of Demographic Research, Federal Scientific Research Center of Russian Academy of Sciences;Research Institute for Healthcare Organization and Medical Management of the Moscow Healthcare Department
Email: volkovaoa@rambler.ru
ORCID iD: 0000-0001-5325-0730
Russian Federation, Moscow, Russian Federation;
Moscow, Russian Federation
References
- Ermakova A.E., Kindras M.N., Lishchuk N.G. Analysis of gender, age and medical aspects of primary disability. Integrative trends in medicine and education. [Integrativnyye tendentsii v meditsine i obrazovanii]. 2022;(3):11—14 (in Russian).
- Smychek V.B. Medical rehabilitation: history of formation, current state, development prospects. Physical and rehabilitation medicine. [Fizicheskaya i reabilitatsionnaya meditsina]. 2020;2(2):7—17 (in Russian). doi: 10.26211/2658-4522-2020-2-2-7-17.
- Naberushkina E.K., Besschetnova O.V. Inclusive potential of young people with disabilities in the field of medical and social assistance and rehabilitation. Society: sociology, psychology, pedagogy. [Obshchestvo: sotsiologiya, psikhologiya, pedagogika].2022;100(8):24—30 (in Russian).
- Yarskaya-Smirnova V.N. Contradictions of urban social time: discourses of inclusion and deinstitutionalization (statement of the problem). News of the Saratov University. New episode. Series: Sociology. Political science. [Izvestiya Saratovskogo universiteta. Novaya seriya. Seriya: Sotsiologiya. Politologiya]. 2018;18(3):242—249 (in Russian).
- Skok N.I., Akvazba E.O., Ukhabina T.E. Methodological foundations of the study of the phenomenon of disability. [Metodologicheskiye osnovy issledovaniya fenomena invalidnosti]. Tyumen: Tyumen Industrial University; 2020. (in Russian).
- Erofeeva N.Yu., Erofeeva M.A., Khramtsova F.I., et al. Gender and education: theory and practice [Gender i obrazovaniye: teoriya i praktika]. Kolomna: State Educational Institution of Higher Education of the Moscow Region «State Social and Humanitarian University»; 2018 (in Russian).
- Shadchin I.V. Formation of conditions for the accessibility of vocational education for the disabled and persons with disabilities. Innovative development of vocational education. [Innovatsionnoye razvitiye professional'nogo obrazovaniya]. 2022;3(35):157—183 (in Russian).
- Fakhradova L.N. Promoting the employment of disabled people as one of the characteristics of a society of equal opportunities. Bulletin of the Voronezh State University. Series: Economics and Management. [Vestnik Voronezhskogo gosudarstvennogo universiteta. Seriya: Ekonomika i upravleniye]. 2016;(2):105—111 (in Russian).
- Osipova E.S. Legal guarantees for the realization of the constitutional right of disabled people to education in the Russian Federation. Law. Right. State. [Zakon. Pravo. Gosudarstvo].2021;32(4):151—153 (in Russian).
- Pridvorova M.N., Pchelintsev A.V. Legal status of disabled citizens in the Russian Federation. Law and state: theory and practice. [Pravo i gosudarstvo: teoriya i praktika]. 2022;216(12):226—229 (in Russian). doi: 10.47643/1815—1337_2022_12_226.
- Cherkashina N.V., Ognev A.V. The history of the development of legislative regulation of the integration of persons with disabilities in labor relations. International Research Journal. [Mezhdunarodnyy nauchno-issledovatel'skiy zhurnal]. 2021;107(5—3):109—114 (in Russian).
- Egorov E.V. Formation of barrier-free urban environment and problems of labor integration of disabled people in Russia. The standard of living of the population of the regions of Russia. [Uroven' zhizni naseleniya regionov Rossii]. 2022;18(4):535—544 (in Russian). doi: 10.19181/lsprr.2022.18.4.9.
- Naberushkina E.K. Disability in the focus of urban feminism. Woman in Russian society. [Zhenshchina v rossiyskom obshchestve]. 2020;(3):142—155 (in Russian).
- Voevodina E.V. Gender identity of women with disabilities. Social and humanitarian knowledge. [Sotsial'no-gumanitarnyye znaniya]. 2016;(1):259—266 (in Russian).
- Dominelli L. Gender Neutral? Women's experience of disability. Journal of Social Policy Research. [Zhurnal issledovaniy sotsial'noy politiki]. 2004;2(1):29—52 (in Russian).
- Yarskaya-Smirnova E.R., Naberushkina E.K. Women and disability: strength tests. Sociological research. [Sotsiologicheskiye issledovaniya]. 2009;(5):70—76 (in Russian).
- Didana A.C. Determinants of Rural Women Economic Empowerment in Agricultural Activities: The Case of Damot Gale Woreda of Wolaita Zone, SNNPRS of Ethiopia. Journal of Economics and Sustainable Development. 2019;10(3):30—49. doi: 10.7176/jesd.
- Kinati W., Temple E., Baker D. et al. Pathways to Empowerment: Case Studies of Positive Deviances in Gender Relations in Ethiopia. Gend. 2023;(40):86—118. doi: 10.1007/s12147-022-09305-x.
- Boudet A.M. M., Petesch P., Turk C., & Thumala A. On Norms and Agency: Conversations about Gender Equality with Women and Men in 20 Countries. Library of Congress Cataloging-in-Publication Data: The World Bank. 2013.
- Kabia E., Mbau R., Muraya K.W. et al. How do gender and disability influence the ability of the poor to benefit from pro-poor health financing policies in Kenya? An intersectional analysis. Int J Equity Health. 2018;(17):149. doi: 10.1186/s12939-018-0853-6.
- Devkota H.R., Kett M., Groce N. Societal attitude and behaviours towards women with disabilities in rural Nepal: pregnancy, childbirth and motherhood. BMC Pregnancy Childbirth. 2019;19(1):20. doi: 10.1186/s12884-019-2171-4.
- Dupont A., Laberge M., Letscher S., Boucher N., Messaouli R., Jutras S. Influence of gender on people with disabilities' work relationships: prospects for ergonomics interventions. Ergonomics. 2022;65(11):1554—1566. doi: 10.1080/00140139.2022.2045363.
